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Thursday, May 31, 2007
Freewayblogger's Take
Meanwhile, in Montana
A forty-nine year old woman who is unable to conceive but who uses the birth control pill as a medical treatment for some complaint goes to a pharmacy, Snyder Drugs, to get her prescription refilled. Instead of the pills she receives a note saying that the pharmacy will no longer dispense birth control pills. The pharmacy has new owners, see, and these new owners believe that birth control pills are abortion. Even when taken by women who can't conceive, it seems. The new owners also signed onto an ad running in the Great Falls Tribune on Mother's Day:
What a fascinating piece of ideology that ad is. Note how it places family as the foundation of the society and then places the "unselfish" mother caring for the babies as the cornerstone of this family concept. If the mother stops being "unselfish" (the quotes are because having children might be quite selfish, too, based on enjoying the children) the family unit will fall down the tree of civilization and all will be lost. Hence, women can't have the pill, because then they might not carry out the needed selfless toil. What a sad view of life this is in some ways. But what is even sadder is the fact that when I wrote about the radical right's tendency to equate birth control pills with abortion the first time the response was one of shock and outrage. Now we are used to this way of thinking, the faith-based one where medical evidence doesn't matter and where the needs of the patients count very little. --- The source is a Planned Parenthood e-mail. See also this Montana blog. |
Mad Cows And Free Markets
Now this is hilarious:
Did you get it? This administration which worships at the altar of free markets doesn't want to let a firm offer better guarantees than other firms offer! It is like telling a firm which wants to raise the quality of its products or their longevity that it can't do that because the other firms will cry. The last paragraph is especially interesting. A "false positive" means that the test identifies a sample as tainted when it is not. The way this would harm the meat industry would be by making consumers of beef scared for no good reason. They might even stop eating cows. Now consider what happens under the system of minimal testing. There will be hardly any false positives and also hardly any true positives (cases where the tainted meat was actually tested), because hardly any meat will be tested. Should the mad cow disease then appear, well, consumers will soon enough show that this happened, by going mad and by dying. The whole thing is backwards. There is no law which would require other firms to follow Creekstone's voluntary testing initiative. It is offering consumers something they might want. Usually this is what the conservatives laud the marketplace for. But suddenly more competition is a bad thing and must be stopped. By the government, even. |
On the FDA
The Food and Drug Administration is weak, toothless. It's a tired old institution and it's scared of the conservative administration. It cares about the firms, these days, more than it cares about the American citizens. The origins of the modern food safety laws in the United States are in a 1938 law. This law, in turn, was pushed through by the horrible events the year before: Over one hundred people died, many of them children, after taking a form of sulfa (then the newest wonder drug) which contained a lethal ingredient: diethylene glycol. Nobody had tested its suitability, and that is why we got a law requiring testing of new medications. In 2006 over one hundred people died in Panama, for the very same reason: diethylene glycol. It was used as a substitute for glycerine, a more expensive but safe ingredient, by a Chinese manufacturer. The story recounting the sad chain of deceit leading in those deaths also mentioned that a wholesaler in the United States caught one shipment of diethylene glycol just in time as recently as 1995! Given this background, you might be interested in learning that the FDA doesn't REQUIRE American firms to test the glycerine they buy from abroad; it just recommends such testing. We need to buy the FDA new dentures, with lots of sharp canines. --- For the links go to my article in the American Prospect. |
Wednesday, May 30, 2007
Women in the Public Eye
Are irritants. Rinsing doesn't really work, but a good bashing just might flush them out. Take Cindy Sheehan. She is quitting as the National Monument of the anti-war movement. It was an impossible job and one that the media initially assigned her, although she ran with it later. I call it an impossible job, because National Monuments of this sort are walking myths and they attract not only adulators and flowers but also dogs lifting their legs nearby, and once the myth is embodied in one person it's pretty easy to pull it down. All Sheehan had to do was to step outside the myth of the bereaved mourning mother and she was toast. Sheehan's case is almost a total opposite of the case of Hillary Clinton. Where critic saw Sheehan as too emotional and too prone to stunts Clinton is seen as not emotional enough, too iceberg-like and too calculating. Too tame. She almost seems to try to live so as to provoke no negative comment, but negative comments she gets in any case. Indeed, three critical books have just come out on her life, politics and future. Bay Buchanan (yes, the sister of THAT Buchanan) even diagnoses her (from a distance and without any qualifications) as suffering from the narcissistic personality disorder! The avalanche of anti-Hillary books should be a surprise, given that the other presidential candidates haven't gotten anywhere near the attention. But then Hillary Clinton is much more interesting to bash, and not only because she is married to Bill Clinton. She is also an uppity woman, an embodiment of all the hidden fears that suggest castration to many conservative men. To learn that about the worst the three books could find on Hillary is that she is ambitious makes for a bit of an anti-climax. Do people really think that all those men running for the job of the president of the United States of America are NOT ambitious? Who the hell would apply for that job without lots of ambition? It's just that women aren't supposed to be ambitious for themselves. It isn't the fact that both Sheehan and Clinton get so much criticism that bothers me. It is the way they are made into something bigger, something more frightening, something more mythical than any human being can be, and the way the criticism is framed and tinted with all sorts of little misogynistic seasonings. The critics are mostly not just trying to take Sheehan or Clinton down. They are trying to take down a myth, to kill it. Before it gets them. |
Off With His Head
I recently wrote about the problem with the overburdened Food and Drug Administration and in particular about the worrisome tainted produce coming from China. In that article I pointed out the relative lethargy of the Chinese government. Well, now they have acted. They are going to execute the country's top food inspector:
Did you know that 80% of the ascorbic acid (a common preservative) comes from China? |
The Squeaking In The Wall
That's the wingnut mice you are hearing, gnawing away at the last hundred years of progressive legislation, trying to get through the joists. Much of this work is done in silence, outside the limelight of the media (where's that white woman eaten by the sharks?). Little mice they may be, but there are many of them. Some even wear judicial gowns:
So you, a possible victim of discrimination, have 180 days to act. That is half a year. I hope you know all the facts within that time. I hope you realize that you might have been discriminated against. On the other hand, if you happen to have discriminated against some folks in the past you can now relax. Of course this decision was expected in the general sense, of course. The clearing out of all non-wingnuts in the Supreme Court was not something unimportant in the blueprints of the conservatives, and it was not just about abortion. It's also important to make sure that women and minorities don't cause a fuss in the labor markets or in the universities. For the proper functioning of the status quo, that is. From the point of view of those who run things. And their mice. |
Thank You, Guest Bloggers
I've come to the conclusion that my vacation was very good for the blog. Lots of interesting posts. My heartfelt thanks to blue lily, hybrid, olvlzl and skylanda (in alphabetical order). Still, I'm back. I think. |
On the AIDS Anniversary
Well, ok, a little belated, but nevertheless. I'm referring to olvlzl's post, because it gives me an opportunity to show you a few pictures the French have used in a campaign to prevent HIV infections (via Phila). Like these: ![]() I get the point they are trying to make. I do. But I think they are also making some points that aren't quite so good. Such as thinking of sex as something to do with yucky creatures. You know, like your sexual partners. But perhaps the net effect is beneficial, as in reminding people to be careful. What do you think? (See how I'm engaging the readers here!) |
Tuesday, May 29, 2007
Guest post by Blue Lily --Race as disability
Back in March the story of the Andrews family of Long Island came to public attention. The NY Daily News announced "What a mess, baby: Parents say fertility clinic botched in-vitro & girl's got the wrong dad":The story came to public notice in March because a judge ruled the couple can precede with their medical malpractice lawsuit but disallowed the claims of mental suffering -- the parents' suffering and baby Jessica's suffering for being a different race than her parents. There's a lot to unpack here and The Nation's Patricia Williams took a stab at it: What's distinctive about the Andrews case is that the parents... tried to cite... Jessica's pain and suffering for having to endure life as a black person. The Andrewses expressed concern that Jessica "may be subjected to physical and emotional illness as a result of not being the same race as her parents and siblings." They are "distressed" that she is "not even the same race, nationality, color...as they are." They describe Jessica's conception as a "mishap" so "unimaginable" that they have not told many of their relatives. (Telling the tabloids all about it must have come easier.) "We fear that our daughter will be the object of scorn and ridicule by other children," the couple said, because Jessica has "characteristics more typical of African or African-American descent." So "while we love Baby Jessica as our own, we are reminded of this terrible mistake each and every time we look at her...each and every time we appear in public." Since the claim of mental distress of their child hinges on appearance and public perceptions of skin color, Williams comments on the family's photo: The picture underscores the embedded cultural oddities of this case, the invisibly shifting boundaries of how we see race, extend intimacy, name "difference." According to the Post, Mrs. Andrews is "Hispanic" and apparently, by the paper's calculations, one Hispanic woman plus one white man equals "a white pair." The mother is "a light-skinned native of the Dominican Republic," seeming to indicate that while she may not be "white," she's also not "black." Each narrative implies that if the correct sperm had been used, the Andrewses would have been guaranteed a lighter-skinned child. But as most Dominicans trace their heritage to some mixture of African slaves, indigenous islanders and European settlers, and as dark skin color is a dominant trait, it could be that the true sperm donor is as "white" as Mr. Andrews. But that possibility is exiled from the word boxes that contain this child. Not only is Jessica viewed as being of a race apart from either of her parents; she is even designated a different nationality--this latter most startling for its blood-line configuration of citizenship itself.Paul Butler at BlackProf discusses the race issue as well. If I understand the legal situation correctly, the parents' claim of mental suffering is essentially a "wrongful conception" or "wrongful birth" claim and their suit on behalf of Baby Jessica's mental suffering is a "wrongful life" claim. New York state, where the case resides, has precedence in these situations, which Manhattan Supreme Court Justice Sheila Abdus-Salaam cited in her ruling. Regarding the "wrongful birth" claim: By logical extension of the principles enunciated by the courts in New York that the birth of an unwanted but otherwise healthy and normal child does not constitute an injury to the child's parents, and that even parents of a child with a serious disease cannot recover for emotional injury for the birth of that child, plaintiffs in this case cannot recover for mental distress arising from having a child who is not Mr. Andrews' biological offspring.... Plaintiffs cannot recover damages based upon their claim that they were deprived of the opportunity to have a child of their own genetic makeup. The Court of Appeals has rejected as too speculative a claim that is " . . . based essentially on "wrongful nonbirth", the deprivation of an opportunity by a woman to have a child by her husband.While these types of lawsuits were originally an additional claim for malpractice issues like failed vasectomies or lack of medical information provided by doctors, much of the case law centers around the distinction of whether or not a child with disabilities is involved. And, of course, that determination hinges on the ability to diagnose that there's "something wrong" with a child at the time a suit is filed. In the Andrewses case, if Jessica had not been perceived as looking physically different from her parents, her genetic differences (in this case, the fact that her father was not a biological parent) may have gone forever unnoticed. And because the wrongful life suit (rejected by the judge) on Jessica's behalf claims she will suffer physical and emotional stress from having darker skin than her family, race is made here to be a kind of disability. Disability, after all, is not only about actual impairments, but also perceived impairments -- the ADA recognizes this fact of the social stigma of disability. While the specific circumstances (of botched reproductive technology leading to wrongful birth and life claims due to skin color) may be new, positing race or gender or ethnicity as a disability is not historically new. Disability is and has frequently been used as a method of demonizing or oppressing other minority populations. That goes back at least as far as Aristotle claiming that women are mutilated (read impaired) males. The medical definition of "hysteria" linked femaleness with mental instability. Irrespective of diagnosed intellectual impairments, black male schoolchildren in U.S. public schools are much more likely than other kids to be placed in special ed classes or considered behavioral problems. There are innumerable examples of oppressed minority identities having their identifying biological difference labelled as a disabling condition. But culturally, we find it challenging to look at the dynamic from the other direction. Sandel's book (discussed briefly in an earlier, May 26, 2007, post) on the ethics of striving for genetic perfection asks: Is it wrong to make a child deaf by design? If so, what makes it wrong -- the deafness or the design? Suppose, for the sake of argument, that deafness is not a disability but a distinctive identity. Is there still something wrong with the idea of parents picking and choosing the kind of child they will have? Or do parents do that all the time, in their choice of mate and, these days, in their use of new reproductive technologies?What if, with an understanding of how elusive and intersecting categories of ability and identity are, that paragraph were rewritten to more closely discuss the Andrewses court case? Is it wrong to make a child dark-skinned by design? If so, what makes it wrong -- the dark skin or the design? Suppose, for the sake of argument, that dark skin is not a disability but a distinctive identity. Is there still something wrong with the idea of parents picking and choosing the kind of child they will have? Or do parents do that all the time, in their choice of mate and, these days, in their use of new reproductive technologies?Intersections between identities are never perfect, and matching women's oppression to racial oppression to disability oppression is never a perfect fit of history and experience, but the Andrewses case does beg the above questions about race. The references to "dark skin" could easily be changed to "light skin" to reflect the family's presumption of genetic whiteness, but the "problem" of skin color difference remains. I confess that I don't know exactly how this court case illuminates the debates over prenatal screening and genetic engineering to avoid children with disabilities. But they are fundamentally related. Cross-posted at The Gimp Parade |
“The 26th Wedding Anniversary does not have any traditional materials or Symbols associated with it.”
| First posted on olvlzl, June 06, 2006 as SILVER ANNIVERSARY You have heard the announcements, it was 25 years ago that they figured out that a new health disaster was beginning. With time they would name it AIDS and learn that it was caused by HIV but in the beginning they just knew that a uniformly fatal disease had emerged. Twenty-five years is long enough for the anniversary to seem dowright nostalgic with old names and faces appearing on TV. Researchers and doctors who haven't been seen since Donahue was on daytimes. Progress is reported on many fronts though at best some of the worst symptoms can be kept down for a while. I won't go into the details of the side effects and expense of the drugs required. Even "Secrets of the Dead" had an interesting piece about genetic immunity to the virus. I won't watch cable anymore so am not sure if the maudlin parade of name victims has been a staple of the coverage. Twenty-five years into a pandemic with effective uniform mortality and there are still 40,000 people contracting HIV infections in the United States every year. For the love of God, there are still babies being born here with HIV infection. Teenagers are often mentioned as a group at major risk of new infection. Twenty-five years and there isn't real condom education on TV. The medium that uses a third of every hour to sell everything else in the world with sex with programs to reinforce the ads for the other two thirds. You can sell anything with sex in the United States except responsibility and life. In the same years that health scientists were begging the United States to begin comprehensive promotion of effective condom use, there has been an effective veto on condom advertisements and education by the clergy, their allies in the conservative movement and the Republican Party. They have kept condom education out of TV in the United States. And while they were doing that they made Rupert Murdoch a citizen of the United States. The "dirty digger" of the infamous "Sun" tabloid, the Aussie T&A peddler was put on fast track for citizenship in the Reagan years so he could start buying media companies and plying his trade in low grade smut and right wing politics. I've got to eat breakfast or I'd go into his being installed as a Papal Knight of St. Gregory during the same period. So it's not the sex they won't let on TV. Mr. Page Three, yes. Condom education? You willing to bet your life on seeing it here? It is twenty-five years past the time when the United States should have ditched the faith based tire biters and put real education about condoms in the mass media. And mass media is the only effective means of mass education we have. How many people can tell you who this fifteen minutes' American Idol is as compared to the number who can tell you where Athens has been for the past 2,500 years? Every week that clergymen or Concerned Bottle Blonds of America delay the airing of real, effective, science based AIDS education thousands will die. They are the angels of preventable death. Completely informed and totally unconcerned, they are worse than the ignorant Moslem clergy who are responsible for polio outbreaks in Nigeria. There is no question that their veto of condom education and the full index of lies and distortions they replace it with are responsible for many times more dead Americans than the attacks of Sept. 11th. And that's just here. The bodies they've left lie around the world. Condoms are the most effective way to prevent new HIV infections. They are safe, inexpensive, simple to use and when used consistently, people live. But they will not be used without a massive education and public relations campaign. They have to be made acceptable, even fashionable. Their use has to be made as every day and habitual as brushing your teeth and using deodorant before you go out on a date. Our media could do that. They can sell anything. If they can get Americans to try sushi they can get them to save their lives. Think of the possibilities, think of what those geniuses behind the Geico ads could do on the subject. Will it ever be done? Will it be done in time for your children or grand children to learn how to save their lives? Twenty-five years and they're still talking in generalities and nice words that Michael Powell would have approved. The TV discussion I've heard is worse than it was during the Reagan years. Clearly, the conservative establishment and their corporate media are going for gold. Note: It’s close to a year since this was first posted. I’m not certain that there are 40,000 more new infections, though I expect there have been. I’m sure we are no closer to having a rational and so moral AIDS policy in this country than we were then. |
Another Good Use Of Time
| Posted by olvlzl. Read about the new perfume brand, Aroma of Sanctity put out by the house of Gingrich. As Seen On TV and endorsed by H.H. James Dobson. |
Randi Rhodes Interview at Buzzflash.com
| Posted by olvlzl. I was tempted to complain about something NPR had on this morning but reading this interview is definitely a more productive use of your time. |
It’s Fine With The “Patriots” When It’s a Republican Ripping Up The Constitution
| Posted by olvlzl. When Bill Clinton was president the airwaves and cabloids were awash with drooling, clearly marginal personalities of the right to far right warning of black helicopters and directives to destroy constitutional government. And I’m not just talking about FOX. Nutcases on the payroll of some second generation Bircher billionaire were more common than dysfunctional E channel celebs. Now, we have the spectacle of a failed regime issuing a “National Security and Homeland Security Presidential Directive” to almost no attention. We’ve seen that with the Bush family before, they seem to have a quite special relationship with the American media. This is a developing story. I’ve looked at what we’ve been allowed to see of the “Directive” and it looks to me that this is a good short version. When the President determines a catastrophic emergency has occurred, the President can take over all government functions and direct all private sector activities to ensure we will emerge from the emergency with an "enduring constitutional government." Translated into layman's terms, when the President determines a national emergency has occurred, the President can declare to the office of the presidency powers usually assumed by dictators to direct any and all government and business activities until the emergency is declared over. Ironically, the directive sees no contradiction in the assumption of dictatorial powers by the President with the goal of maintaining constitutional continuity through an emergency. We’d better deal with this now before, um, events catch up with us and we suddenly find ourselves with a Constitution in name only. The Rexal rangers and “patriot” militias will be taken off of black helicopter watch, deputized and rounding us up. Last month you that might have thought that was a slightly more fantastic scenario than you might after reading what the Bush regime has released. Who knows what might have been classifed behind the national security smoke screen. |
Monday, May 28, 2007
Connecticut's War Dead
Recreating Lives From Fragmentary Evidence
| Posted by olvlzl. The larger stone, behind the American Legion Flag: George S. Butler Son of George and Sara 1843 - 1862 Buried in Maryland. Another stone beside it: George S. Butler Son of George and Sara. 1865 - 1924 No other stones beside it. See also: I'm off with my family for the rest of the day. I hope you have a good Memorial Day. olvlzl |
Sunday, May 27, 2007
Our Father Hardly Ever Talked
| Posted by olvlzl. Our father hardly ever talked about being in battle as a marine during the Second World War. Hardly anyone I’ve known who was in combat talked about it. The ones who did were usually drunk. He did tell me once that he knew he had killed three men. Though he knew they would have killed him and that they were part of one of the most murderous invading armies in history, he regretted having to kill them. When he was 23 our father was hit by a fragment of a mortar shell and almost died. His wounds left him entirely blind, somewhat deaf and with loss of some function in his arm. That made him the target of job discrimination. In tandem with the discrimination, his disability also marked him in our area as a “war hero”. We grew up with our father being a war hero as part of our background music. I remember someone being scandalized when, as a teenager, I whined about how unreasonable he could be. “But he’s a blind man!,” was the stunned reaction. A war hero is just your father when that’s what he is and you’re still a teenager. His presence at Memorial Day parades was expected and prominent. Going against stereotype, he and my mother were and remained very liberal. Roosevelt Democrats, and more Eleanor than Franklin at that. He despised Oliver North for hiding behind his uniform and accepting immunity. As a marine, he hated MacArthur. He never encouraged any of us to enlist. When he was in his sixties my father started having problems with his liver. The doctors couldn’t find anything specific but the markers in his blood weren’t good. The symptoms made it necessary for him to spend most of his last year in the hospital. Finally they diagnosed cancer of the liver and they sent him home after arranging an appointment with an oncologist. About the same time they tested him for hepatitis C, the test was positive. Going over his medical history they figured out that he must have gotten it when he was given a blood transfusion at the field hospital after he got hit 45 years earlier. They didn’t know about hepatitis C back then, no other explanation was ever found. He died the next week. The dying goes on a long time after the treaty is signed. P.S. Something else. I never heard him say "semper fi", not even to other marines. |
On a Venerable Beau
Still hovering round the fair at sixty-four Unfit for love, unable to give o’re. A flesh fly, that just flutters on the wing, Awake to buzz, but not alive to sting; Brisk where he cannot, backward where he can, The teasing ghost of the departed man. David Mallet 18th cen. |
Note:
Rachel Carson, at 100
| Posted by olvlzl. Rachel Carson did not go gentle into that good night, her words in Silent Spring "forked lightening" and resonate today. They are important enough that even as she has become a widely accepted icon of present day thinking, she is still drawing fire from those whose psychotic attachment to wealth and ingrained custom is stronger than their ability to see that the Earth will not be able to sustain the life that both require. The centennial of Carson's birth is being commemorated with observances around the country today. Her place in the American imagination is enduring: "Silent Spring," published in 1962, led to the creation of the Environmental Protection Agency and to banning the pesticide dichlorodiphenyltrichloroethane, or DDT. State and federal office buildings, bridges, greenways, natural refuges, all sorts of awards, and at least four public schools are named after her, from Virginia to California. But revisionists are busy besmirching Carson's legacy. In Washington, Senator Tom Coburn, an Oklahoma Republican, has placed a stop on an innocuous resolution praising Carson on the centennial occasion. The resolution notes her "legacy of scientific rigor coupled with poetic sensibility." Coburn and other opponents of environmental regulation claim more people die from malaria and other insect-borne diseases, especially in the developing world, than were ever saved by eliminating DDT from the environment. The scientist who introduced DDT in 1943 -- just as a typhus epidemic was threatening Allied troops in Italy in World War II -- received the Nobel Prize, after all. But any fair cost-benefit analysis must take all costs into account, and it is hard to measure the value of the illnesses, species decimation, and toxic pollution that did not happen because DDT was banned. “ Your money or your life”. When Jack Benny hesitated it was funny. Some idiots in what passes as popular culture are cracking jokes about the dying biosphere, even today. It’s not funny. It never was but reality is about to deliver a deadline that will drown out the punch line. Sometimes, as in the Daughters of the American Revolution's refusal to allow Marion Anderson to perform in their hall, it is the controversy that proves to be the greater honor. The likes of Tom Coburn dishonoring Rachel Carson only confirm that she is due that greatest of all honors, being taken seriously long after her death. Her words still enlighten the world today. |
Saturday, May 26, 2007
Guest post by Blue Lily -- The Case against Perfection
| A new book by Michael J. Sandel, called The Case against Perfection: Ethics in the Age of Genetic Engineering, explores the moral issues created by the increasing knowledge about genetics and the scientific abilities to manipulate our future because of it. I haven't read the book yet, though I do plan to. But an excerpt from the opening pages (available here in .pdf format) offers some intriguing questions which are related to an upcoming post I'm working on. Sandel begins by looking at a deaf lesbian couple who chose to have a deaf child and juxtaposes that rather radical decision with those couples who seek genetic perfection in their child: Is it wrong to make a child deaf by design? If so, what makes it wrong -- the deafness or the design? Suppose, for the sake of argument, that deafness is not a disability but a distinctive identity. Is there still something wrong with the idea of parents picking and choosing the kind of child they will have? Or do parents do that all the time, in their choice of mate and, these days, in their use of new reproductive technologies?The technology of genetic engineering is one cultural location where the politics of reproductive freedom and disability rights come together. These are not the only issues, or the only place these two interests intersect, but it is probably the most culturally compelling in our time. Cross-posted at The Gimp Parade |
Guest post by Hybrid: Medicinal Cybersex?
| You may have already heard something about this lawsuit in the United States, in which a former IBM employee is suing IBM for wrongful dismissal, on the grounds that they neglected to provide adequate support for his cybersex addicition. And I quote: In his legal action against IBM, James Pacenza admits that he spent time in chat rooms during work hours, but claims his behavior is the result of an addiction and that IBM should have offered him counseling instead of firing him. Employees "with much more severe psychological problems, in the form of drug or alcohol problems ... are allowed treatment programs" at IBM, Pacenza argues in his lawsuit.Presumably, IBM does not allow someone to drink on the job, and presumably, you could be fired if you just smoked a little pot "'as a brief diversion from work,'" even if you have PTSD. I have yet to work at a company that did not similarly prohibit adult material of any kind on its networks, systems, and computers. Here is where the only grey area seems to exist for me: I would wager that with the exception of some corporate events, IBM does not provide its employees with alcohol at work, and hopefully never provides them with illegal substances. Pacenza had a computer on his desk, though, and access to the internet, as so many of us corporate shills do these days. It's a false distinction. Computers and internet access are as neutral as any other piece of office equipment. If someone looks at the work-provided fridge and sees a place to store their beer, or sees a lock on their desk drawer and sees it as a perfect spot for the stash, or sees their desk phone and thinks about calling their dealer, then they have a problem. If someone looks at a computer and internet access as chat rooms and pron, then they also have a problem. At the point at which the abuse of the work-provided tools becomes extreme, I think employers are justified in taking action. Incidentally, I could probably fill a whole separate post on how the internet becoming synonymous with pron is problematic to begin with, but I'll resist the urge and just note in passing that this case appears to be predicated on the notion that pron and cybersex are simply harmless and normal parts of the internet experience that can become addictive for some people. My feminist objections to this notion in general, and this kind of lawsuit in particular, are fairly standard: I worry about whether or not any harm is coming to women through the chats, or pron being created or exchanged, or if any harm is being done to minor children. (How this passes for "sex" is still a bit unclear to me. I can chat with someone online about going out for pizza, but it wouldn't occur to me to think that I ate in doing so.) I worry about how the pronification of this man's reality affects the women who have to work with him. The objections that I have to this kind of thing as an IT worker are perhaps obvious as well. In my experience, people aren't all that careful about hiding their pron. So the moment I arrive to fix your computer, there is a good chance that I or one of my coworkers will see it, grossing us out and spoiling our day. Congratulations! You have exposed the company to a sexual harassment lawsuit! Not to mention that this behavior hits me where it hurts - in the IT budget. If you are transmitting huge files and sucking up bandwidth, IT has to cover that cost. If you break your computer through spyware infections and virus infestation, it puts legitimate data at risk and costs the company time and money to repair the damage. If we are asked by HR to monitor your internet activities, that takes time and money away from getting other work done. Which is all fine if you are the size of IBM and have one employee like Pacenza, but this is a problem that doesn't scale. IT departments already cost companies a lot of money. Companies have no interest in increasing their IT costs to cope with a workforce who cannot or will not refrain from excessive personal use of their work computers and the consequences arising from such use. It pains me to come down on the side of Big Blue instead of the little guy. But I have to admit that while I hope that Pacenza gets the help that he needs for his addiction and his PTSD, I hope on behalf of IT workers everywhere that this lawsuit is dismissed. As a feminist, I will continue to see harm to women as the elephant in the room of this discussion. And as a feminist working in IT, I think about how a positive outcome for Pacenza in this case could affect my future in an already sexist industry. |
Ethel, The Last One.
| Posted by olvlzl. The widow was a gold star mother. Her son killed in Korea, no other children. She was old when I knew her. Her husband, one of my father’s “radio bug” friends, “another ham, WWI”. Antennae all over their yard. And a tower held up with guy wires. He told my father to take it when he died but he never got around to it. She talked on and on about nothing. Usually nice, sometimes she’d fret and no one knew why. Pixilated, someone said. She died last. They came to clean out her house, take away the old radio stuff she’d never gotten rid of. She left movie magazines. Thousands of them, in neat bundles all over the house. She’d played piano in the theater a town over, before talkies. |
Friday, May 25, 2007
Guest post by Skylanda: One more word on Baby Emilio and the Texas futility of care law
The recent death of Baby Emilio - first and foremost a beloved though very ill child, secondarily the test case for the Texas futility of care law - forces a re-examination of the intersection between ethics, health care finance, and since that's not complex enough, the differential value of life in the context of a world that still doles out merit points based on race, origin, and membership to a class that can pay for private medical insurance in one of the few industrialized nations that still allows vast numbers of its own citizens to go without. As a health care worker, I sympathize with placing limits on futile care. Doing time in the ICU, I've seen innumerable cases where family choices for a dying and incognizant loved one were misguided at best and self-indulgently cruel at the worst - an elderly women with metastatic breast cancer in the dying throes of septic shock whose family wanted to know when the next round of chemo was to begin, a young man with motor vehicle injuries so severe his only brain activity was relegated to the grand mal seizures he succumbed to every time his sedation was lifted enough to run a useful EEG whose family refused for weeks to let him go. Give anyone on the blunt end of an intensive care shift a couple of beers and they can haul out half a dozen stories like these. And though the health care professionals who choose this field are obligated and skilled at performing many unpleasant tasks, it is beyond their calling - and ethically unconscionable - to ask them to repeatedly perform acts that are rooted in causing suffering without measurable gain to the patient anywhere in the equation. But no health professional is a monolithic care provider alone. Last summer, in a guest spot here at Echidne, (scroll down to my post most of the way down this page) I wrote about a little girl who suffered from a profound lung injury during a bone marrow transplant gone terribly wrong; that little girl was my niece, and at the time I hit the "post" button, she was eight weeks into her ICU stay. Half a dozen times, when her blood pressure bottomed out, or when her chest x-rays looked particularly gruesome, or when some resident had to crawl out of bed at an ungodly hour of the night to poke yet another hole between her ribs to thread a chest tube into her frail body, the doctors on the service asked my brother and his wife to withdraw her care. She was too sick, they said. Other children that sick have not made it, there is no reason to think she will. The odds are so stacked against her...even if she survives, she has probably stroked out during all those episodes and there may be nothing there to wake up to. Her care, they argued, was futile. Another eight weeks into her ICU stay, she was just stable enough to lift the sedation. She awoke, slowly, over a period of weeks, and she began to communicate. Five months after the crisis began, she left the ICU for a rehabilitation floor and began a long convalescence. On February 1st of this year, she went home to live with her mommy and daddy and baby brother again, physically disabled from her long stay in bed but growing stronger every day, and with no discernible cognitive impairment. She'll start school again this coming fall, perhaps even with the second-grade classroom of kids she left when she fell ill a year and a half ago; the only obvious marker of her four months rapping at death's door is the thin plastic line that runs between the tracheostomy hole in her neck to the oxygen machine she still relies on to get her through the day. Needless to say, your worldview gets a weird little tweak when the universe hands you a big fat smoochy miracle. We won the karmic lottery - with every statistic against her (only 3% of bone marrow kids who go into the ICU come out alive; only a quarter of the kids who come down with one of the vicious viral infections she suffered from respond to treatment; and on and on), she pulled through, egged on by some truly spectacular care and some wildly dedicated parents who would hear nothing of "futility" and "withdrawal of care." So. Sometimes forcing the withdrawal of care against family wishes is an act of mercy. Sometimes it's closer to murder. Most of the time, one cannot tell without being right in the thick of it which is closer to the truth in any given case, and sometimes even from that vantage the truth is obscured by conflicting realities. Media coverage rarely tells anything like the whole story - especially given the draconian privacy directives of the HIPAA law, which allows involved individuals to disclose information at will but muzzles hospital staff, thereby biasing media reports heavily toward the only side that is allowed to tell the story. But there are a few things that need to be sorted out in every case like this. One is that finances need to be both a fundamental consideration in care algorithms at the planning level but entirely extricated from decision-making at the individual level. A health care system needs to decide how - or perhaps if - it is going to finance resource-intense cases like premature babies, traumas with lengthy convalescence periods and questionable outcomes, high-morbidity cancer cases, and the like. Once the tough decisions are made (and make no mistake, they are tough...try this one on for size: should a 23-week preemie, at the very edge of viability, be revived and sent to the NICU or considered a tragic but conclusive miscarriage?), they should be applied evenly across the board. Rich or poor, black or white or Hispanic or otherwise, privately insured or on the Medicaid roles, the rules need to apply to everyone. One of the most disturbing aspects of Baby Emilio's case was the racism and anti-immigrant sentiment that oozed out of the woodwork. When Blue Lily's blog, The Gimp Parade, was linked from an AOL story, the commentary that escaped moderation on this topic ranged from point blank questioning on whether this kid was "illegal" or not (answer: mom's family has been in the US for generations) to tirades about who "deserves" to access the public dole. But guess what, folks? Anyone who undergoes expensive medical treatment is a drain on the system. The pretense that the payment of a few premiums into a Blue Cross account prior to your life-threatening motor vehicle accident puts you in a financially less leech-like position than the kid who just crossed the desert in his mom's belly to be born into a NICU in a border-town hospital is a happy delusion designed to make the privileged feel less edgy about the entitlement to care we receive as a member of the somewhat arbitrarily designated class of "insured" people. In fact, no insurance premiums that you will ever pay will cover a million-dollar hospital stay - under our current system, even private insurance is still very much a public good: your expensive hospital stay drives up premiums for your coworkers, your neighbors, your family, the next state over. Emilio on Medicaid was no more a drain on the system than a cancer-ridden CEO with the fattest private insurance policy on the market, because all of these are billed to a collective pool that some group of Americans are kicking into and will have to cover. No one pays for this kind of stuff out of pocket because no one short of the Bill Gates social strata can pay for it out of pocket. For example, my niece's first medical bills - for an ICU stay and induction chemotherapy - topped out at around $100,000, billed to the military's Tricare system in deference to my brother's recent return from Iraq; after the bone marrow complications began and she was transferred to the Medicaid system, the hospital quietly stopped sending bills home at all, so we have no idea what the final total was, but the best guesses range up into the $1-2 million realm. The fact that she is white and middle class and so darling (don't make her adoring aunt bust out pictures!) she could charm the socks off the most hardened able-ist bigot does nothing to change the fact that she drew just as much off the regional Medicaid budget as a poor Hispanic kid named Emilio. The fact that this price turned out to buy her life back was a roll of the dice none of us could have predicted - at the time, one could have argued against her care the same way they argued against Emilio's: futile. Too costly. Time to face the harsh reality of life and let her go. Most of us will become disabled at some point in our lives. Unless you are hit by a bus and die at the scene, or suffer a fatal heart attack without years of prodromal symptoms, or find some equally precipitous way to go, most of us Americans will eventually draw off the intensive, expensive care provided by the US medical system as we grow older and ever more impaired. The question of futility of care needs to be a balance of mercy and love in an imperfect system that sorely lacks the resources to give indefinite life to everyone - but it needs to be divorced from the idea that some do and some do not deserves it and the delusion that some are paying for it themselves just because they kicked in a couple hundred a month in insurance premiums for a few years. Despite every mixed feeling I have on forcing doctors to continue futile care for terminally ill individuals, I for one am glad to hear that this child died not from care withdrawn but under as natural circumstances as possible; the family has been through enough, and the trauma of this very public episode is certainly not going to come to a close just because Emilio's life has ended. His mother deserves whatever peace she can squeeze out of this unhappy circumstance. Instead of sniping at a desperate mom, maybe we could each take a moment to be thankful for not being in her shoes: there but for the grace go we. Posted by skylanda. |
We Are At War With The War Party. May 25, 2007 Has No Time For Cry Babies.
| Posted by olvlzl. In May 2007 that means they have to find the way to end the Republicans’ lock step support for it because that is the wall between us and the end of the war. Yesterday was the long version of this, today let’s getting right to the point. The left has no option but to work with the Democrats who oppose the continued occupation of Iraq. They are our only tool. There is no other choice available. Those in the house and senate who opposed the funding bill need to lead us to do what will work to end the war as quickly as possible. They can’t be coy about it. They can’t consider legislative etiquette unless that is necessary for success. They know that they were put into office to END THE WAR IN IRAQ. In May 2007 that means they have to find the way to end the Republicans’ lock step support for it because that is the wall between us and the end of the war. The Republicans need to be attacked on this issue and those seats that are at risk earliest, in the places most likely to throw them out of office, are were we need to focus our fire. Those are the Republicans who can be turned, they have to be made answerable for the war of their president and their party. It has to be the constituents in those places who make the attack, national groups run the risk of giving them a campaign dodge which they will welcome. That was the lesson we learned from Connecticut last year. The temptation is to go into the wider implications about these issues, if you’ve read me you know my weakness for that. But this is the here and now problem. We face a terrible situation of having to stop a war. Over the past fifty years the real ability to prevent a president from starting and sustaining even the most criminal and idiotic war has disappeared. We have had absolute proof that even the power of the purse isn’t in the hands of the congressional leadership any more. The political and media realities of May 2007 have destroyed the balance that made congress a hurdle for unbridled presidential war powers. That is what we have to restore, it involves strengthening the position of the Democratic leadership, not weakening it. Anything that doesn’t do this is helping Bush and his war party and will prolong their war. Grousing about the fact that the Democratic leadership has to work with the reality they’ve got will only strengthen the Republican war machine. It’s time for the left to stop crying about what it can’t have now and to get what can be gotten. Only after that can we work with a new reality instead of the one we have today. Ending American involvement with the Iraqi civil war is the most urgent and important issue we face. We don’t have time for make believe in 2008 or, as some deluded fantasists are alreadly dreaming, in 2012. We have to win politically as fast as we can. It’s time for clear thinking and concentration on as much of the reality as we need for success as soon as that can be managed. Wishful thinking and chasing after theoretical rainbows that have proven to not be there are a waste of our dwindling time. It’s time for the leaders of the anti-war majority to lead us and for us to focus our efforts on the attainable. |
Guest post by Blue Lily -- Check out Disability Blog Carnival #15
The latest edition of the twice-monthly Disability Blog Carnival is up at Ryn Tales, where "Family" is the theme. Under that theme, host Kathryn gathers posts on the following topics: Loss of Anonymity, Don’t speak for me, What it’s like, Demystifying and Diversifying the Meaning of Perfection, Get a Clue! Tips for Family and Friends, Impact of Prejudice, A Day in the life: Parenting, and Hope for Ellie's Future.The next carnival is at PilgrimGirl where the theme is "Borders": submission deadline is Monday, June 11, 2007, and further info is here. Cross-posted at The Gimp Parade |
Guest post by Blue Lily -- Movie review: Emmanuel's Gift
| I didn't expect to like this 2005 documentary, the story of Ghanaian Emmanuel Ofosu Yeboah, born without a tibia in his right leg and one of the two million people in his country living as a second class citizen. Why did I dread watching this flick? Yeboah "overcomes adversity." That tired inspirational trope that dominates stories of disabled people's lives. He rides a bicycle across Ghana. I've never really understood athletic endeavors meant to be attention-getters for some cause. Go pound some nails instead, okay? Do some activity with actual value beyond it's celebrity. And the film is narrated by Oprah Winfrey, who has never before uttered the words "disability rights," though she has no problem exploring the medical aspects and social misfortunes of impairment. Oh, Winfrey's had guests who happen to discuss ableism and crip rights -- Chris and Dana Reeve (to some degree) and William H. Macy* (eloquently) are celebrity examples. Never once did I see her take that bait and follow the thread of social injustice or call for people to demand change. So I had reservations aplenty. But here's the thing: In Ghana, where an astounding one in ten citizens have some sort of disability, infanticide of visibly disabled infants is common. If they aren't killed or hidden away shamefully, disabled Ghanaians become beggars on the street. That is the range of options. So a guy with one working leg riding a bicycle across the nation -- 380 miles -- and calling for disability rights and opportunities had an incredible impact on a society that thought it had everyone in their rightful place. When Yeboah was born, his father saw him and promptly abandoned the family. His mother was encouraged to kill her son, but instead she sent him to school and taught him he deserved all the privileges and opportunities nondisabled people have. When Yeboah had trouble getting the other schoolkids to let him play with them, he ingeniously saved his money (no easy feat) and bought his own soccer ball -- a rare commodity. The price of playing with it was letting Yeboah join in the game using his one full-grown leg and crutches. With his mother ill and medical bills to pay, young Yeboah shined shoes for money. He left his village and family behind to go to Accra, the nation's capital, to earn $2 per day shining shoes instead of just $1 per day back home. So, he's a teenage boy on crutches shining shoes far from home to support his family -- mom and two younger siblings, I believe. Yet after his mom dies and he applies to the Californian Challenged Athletes Foundation (CAF), he asks not for cash but for a bicycle because he's thinking big. He wants all Ghanians to see that disabled people can do more than be street beggars. Yeboah's bike ride makes him a national hero and celebrity. The film follows his visit to America, where he competes in some athletic events and decides on amputation of his limb so he can wear a prosthesis. He returns home without his crutches, but with political momentum. We see him meeting with tribal chiefs, disabled beggars whom he encourages to reach for more, and most poignantly, the father who abandoned him. The film's slick editing interferes with the story, but the celebrity created by Yeboah's bike ride forces public officials to reconsider national disability policy and respond, as one canny bureaucrat notes, that ''we may have underestimated the urgency of the matter." Returning to the United States, Yeboah meets with fellow Ghanaian and then-U.N. President Kofi Annan, and also receives grant money for his goals of helping other disabled Ghanaians and starting a wheelchair basketball team for the 2008 Paralympics in Beijing. In a historic meeting at King's Palace in Kibi, Ghana, where because of superstition and stigma no disabled person has ever before been invited, King Osagyefuo praises Yeboah and throws his support as leader of 2.5 million people in Eastern Ghana behind efforts to improve the lives of disabled citizens. Says King Osagyefuo: “The society and country are not set up to take care of handicapped people. Emmanuel has tenacity, endurance and he has a strong heart to do the things that he is doing and to use what he has done as an example for other disabled people. We will support him and tell the government that they are also part of us—they may be physically challenged, but mentally and intellectually they are the same as us.”The King's statements are nothing short of revolutionary in a culture where disability is commonly believed to be the karmic result of immorality. Yeboah hopes to become a member of the Ghana Parliament one day. In the meantime, he's married -- to a nondisabled Ghanaian woman, which is apparently a feat of disability acceptance in itself due to cultural stigmas -- and has a daughter. The film fails to show these last and most ordinary achievements in his life, but Yeboah's story shines through any directorial shortcomings to show what a single person can achieve when he is taught his own self-worth. ------------------------------------ * IIRC, Macy appeared on Oprah after the release of Door to Door, his award-winning made-for-tv true story of Bill Porter, a man with cerebral palsy who confounded all expectations by becoming a top door-to-door salesman. Macy had become a national ambassador for United Cerebral Palsy and when prompted by Oprah about his volunteer position he spoke eloquently and at length specifically about disability prejudice and discrimination. Cross-posted at The Gimp Parade |
Thursday, May 24, 2007
Late Birthday Greetings To The Not Late Studs Terkel
| Posted by olvlzl. Studds Turkel turned 95 on May 16. Here is a recent interview in the magazine In These Times. Take this story. You know I walk to the bus. Bus number 146. They know me in the neighborhood. They know I’m a writer. They know me as the old guy who’s garrulous. I talk to myself. [Laughs.] So one day there’s this one couple, they ignore me completely. So my ego is hurt. And I say, “The bus is late.” And I say, to make conversation, “Labor Day’s coming up.” And the man just turns and looks at me—Brooks Brothers, under his arm, the latest Wall Street Journal. And she’s a beauty. Neiman Marcus, Bloomingdale’s. She’s got Vanity Fair in her hand. And he turns, looks at me, and says, “We despise unions.” And then he turns away. And I said, “You what?” And the bus hasn’t come yet. “Do you know that in 1886, ‘87, four guys got hanged? How many hours a day do you work?” He says, “Eight,” reflexively. I said, “How come you don’t work 18 hours a day? Four guys got hanged for you. Did you know that?” They think I’m crazy. They’re scared. (Laughs.) He says that the book he's got coming out in the fall is his last one. I think he's said that before though. |
I Kid You Not, This Was A Question I Got Asked Yesterday.
| Posted by olvlzl. “Even worse than the invitation to bias is the basic idea that the normal processes of science wouldn’t suffice to falsify claims called “extraordinary”.* I suspect the normal processes of science will not suffice to falsify the statement that there is a china teapot orbiting somewhere between Jupiter and Saturn for a long while yet, because it’s just too big a space to search. Does this bother you? I’d be bothered if I found out that publicly financed science was looking into this, if that’s what you mean. Though I'd want to know if the science wasn't falling victim to a sensational claim of what was being looked at first. If it’s some balm pot looking for a tea pot and not potting someone else in the process, no, that doesn’t bother me. Who do you know who is attempting to answer this question with science? If it was someone I met who shared with me that they had the belief that there was such a tea pot? I might be charmed to have come by an example of that too rare species, the genuine harmless eccentric. If there was no reason to suspect that they were going to do themselves harm I might lend them up to a half hour of my time for their exposition, knowing that they were probably enjoying themselves and were providing me with a useful anecdote. * I’d said that if the normal processes of science couldn’t falsify “extraordinary claims” that they would, by the rule that science had to have consistent standards of objectivity, also be unable to be relied on for “ordinary” claims. You don’t want to hear my full rant, it sounds too eccentric. Update: An e-mail points out that even if finding the tea pot would have involved more effort than it's worth that the search itself would be a matter of fairly conventional though pricy technology. I don't care to consider "extraordinary technology". Being in enough hot water already. |
Texas Enlightenment? Renaissance? Maybe They’d Better Come Up With The Name For It.
| For Tena and RMJ Posted by olvlzl I’ve learned recently that it’s not only history but also the law that is better able than the behavioral sciences to deal with complex, political realities through reasoning. Lawyers are trained in rigorous reasoning about very complicated things, some of them even favor liberty and the common good. The great and futile yearning for final answers and clear results might be what obscured that common sense conclusion. But reality shows that there is no rational reason to expect that satisfying finality is available in the areas of government and the law. We get what might be called a preponderance of effective benefit. What works just has to work better than the alternatives, at least more often than not. That’s as good as we are going to get. As long as there are people to have governments and laws there isn’t going to be an end of history. I hope that this is true and time doesn’t produce any of the various utopias proposed when some of those of a scientific bent start speculating on the perfect society. Some people like to go on about modern democracy as resulting from the Scottish Enlightenment, those dour philosophers sometimes including, oddly enough, Locke and stretching it out rather too far and for rather suspect reasons to Smith. Maybe those guys informed some of the Constitutional Convention but that was a long time ago. We’ve learned a lot through living under the Constitution and correcting just a few of its major flaws. But repairs don’t seem to be doing it for us anymore. We might be at the major political crisis since the Civil War. We need a new Enlightenment for the renewal of our politics and society. And perhaps history has provided in answer to that need. Why it’s taken us so long to realize that Molly Ivins, Jim Hightower, Ronnie Dugger, Bill Moyers, .... constitute a vastly impressive and vitally useful body of thought can only be because they aren’t concentrated in one of our major attention grabbing locations. It’s almost certainly the accent too. While we have been lucky enough to not have escaped their influence I propose that they get the full attention that such a brilliant, miraculous, group of thinkers and writers warrant. They aren’t providing the kinds of final proclamations that others have, it’s not their style. I think they, themselves, all realize that they are fallible and that their worlds aren’t written in stone. They seem to have benefitted from seeing that no philosophical pronouncements in these areas has proven to be the last word. I sense a trust in the force of evolving, informed thinking in this group, a full appreciation for good will and common decency that could take a dead piece of paper and use it to kindle a real enlightenment here. It would be good for the United States, The World and it wouldn’t do Texas any harm to have them to be proud of for a change. |
Keith Olbermann Gets It Right
| But, as always, the whole story won’t fit on TV Posted by olvlzl. The deal on funding the ongoing occupation of Iraq stinks, there is no avoiding that smell. It isn’t anything as natural as methane, it’s more like a chemical toilet. Entirely artificial, worse than the thing it’s designed to cover up. The Democratic leadership is going to take the heat for it and I’m sure they know it. That’s part of being leaders. But let’s give them their due, they tried for better things and failed to resist Bush's veto power. That failure was, in part, through trying to do with internal congressional politics what in a real democracy would have been a question of legitimate politics. They should have been able to end this disaster by relying on their rank and file members to heed the express will of The People*. The temptation will be to see this as entirely their fault and to abandon them. A case might be made for them deserving a heap of blame, either through lack of courage or just insufficient skill. But dumping them won’t fix it in time. It will hand Bush complete victory. A disaster as huge as Bush War II requires that the political system that produced it be changed to fix the disaster and to avoid it happening again. It’s the political system that requires fixing. I think the reason is pretty clear. Our system was never perfect, it always had deep flaws, no human institution works as it’s supposed to. But it used to work somewhat better when we had a free press that was required to make an effort at informing The People in objective reality. Olbermann aside, the commercial media in this country is a fully vested member of the Bush regime. FOX triggered the coup** that put him in office, effectively the entire media, including the New York Times ratified the coup so |



